Physical deformities and other health conditions
Did you read on a story where a baby girl was born with two faces? Allahu Akbar! Apparently the baby has the two faces, two noses, two pairs of lips and two pairs of eyes, all four eyes blinking at the same time; and yes, she is drinking milk normally. Amazing!
The baby was born to an Indian couple on March 11 in a northern Indian village, 50 kilometers, east of New Delhi. She was named as Lali (in Brunei Malay, lali is a verb meaning forgetful).
Now the Indians believed that the baby is a reincarnation of a Hindu goddess of valour, Durga, a fiery deity traditionally depicted with three eyes and many arms. So Lali is being worshipped with flocks of people, accounting of up to 100 daily, visiting her at her home, with offerings and blessings.
Her medical term is referred to as an extremely rare condition known as craniofacial duplication, where a single head has two faces. Doctors has suggested for little Lali to under-go a CT-scan to determine whether her internal organs were normal but her father refused because its unnecessary, he said.
I wonder how Bruneians would react with such birth? Would such child be received with open arms or would she be left out from the society? Would she have friends to play with?
I know we have the Oral Maxillio Facial Department at RIPAS Hospital where surgeons there construct facial deformities caused by accidents or are birth defects. In Islam it is forbidden or haram to change your physical appearance unless its deem necessary then it become harus or acceptable.
My first cousin was born with a down syndrome; she must be over 50 already but as with those with down syndrome, she still look like a girl. When I was small, I thought that she was an orang-putih or westerner because of her appearance. She also threw tantrums and didn’t speak properly so people wouldn’t understand her and left her. I left her because I was scared of her.
Yes she grew up at home all her life. Last time I visited her, she played with her young nieces. I asked her how she was and she just looked at me blankly. I wasn’t that close with her so I guess she didn’t know me.
Health-related conditions now becoming more apparent in Brunei is autism. Autism, according to the National Autistic Society, is a lifelong development disability. Those who have autism have difficulty with social communication, interaction and imagination. A recent news report said that Brunei has about 600 registered children with autism and less than a hundred attends counselling and therapy. How sad could that be? I don’t really understand on why parents to these children wouldn’t go. I know I wouldn’t understand how difficult it is to raise such children but at least a therapy could help yes?
Anyway, have a read at this heart-warming Bruneian blog on a mom’s experience with her boy who has autism; appropriately named: A personal journey with autism in Brunei. I intend to write more on autism…